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Bubble boy
Apr. 12th, 2006 | 03:16 pm
mood: 
drained
music: Metal Fingers presents: Special Herbs the box set Vol.0-9
I'm the boy in the bubble. I'm the caged bird without a voice.
It finally happened on March 28th. The infamous graft. The Fibular Bone Graft, which would repair the decayed thighbone. I have to say that it was the most painful experience that I've ever been through. My body was engulfed by pain during that first week. Tubes ran through me. The Epidural in my back. The Catheter in my penis. Not a pleasant experience.
At this moment, I would like to thank MCV/The Medical College of Virginia for prescribing the steroid known as Prednisone to me. For not monitoring my condition properly, and allowing the steroid to decay my thighbones. It has definitely been a life changing experience.
I've been home since April 1st. Well, at my Father's house. I don't consider this place my home. The first couple of days back here were hard, but my pain levels aren't so bad at the moment. Staying comfortable has been the struggle. The pain meds keep me drained, and I'm tired of sitting on my bed. I'm tired of hearing the sounds of the outside world. The sun glares through my small window, and I can't put any weight on my leg for six weeks.
In other health related news, I have a Rheumy appointment next week, and I'm curious to see what route she wants to take for my Myositis. I'm still not in remission, and Prednisone is obviously not a choice anymore. I'm down to 2 mgs of the steroid. She doesn't want to explore any new treatments, so I'm frustrated with her decisions. Will this be a pointless appointment?
It finally happened on March 28th. The infamous graft. The Fibular Bone Graft, which would repair the decayed thighbone. I have to say that it was the most painful experience that I've ever been through. My body was engulfed by pain during that first week. Tubes ran through me. The Epidural in my back. The Catheter in my penis. Not a pleasant experience.
At this moment, I would like to thank MCV/The Medical College of Virginia for prescribing the steroid known as Prednisone to me. For not monitoring my condition properly, and allowing the steroid to decay my thighbones. It has definitely been a life changing experience.
I've been home since April 1st. Well, at my Father's house. I don't consider this place my home. The first couple of days back here were hard, but my pain levels aren't so bad at the moment. Staying comfortable has been the struggle. The pain meds keep me drained, and I'm tired of sitting on my bed. I'm tired of hearing the sounds of the outside world. The sun glares through my small window, and I can't put any weight on my leg for six weeks.
In other health related news, I have a Rheumy appointment next week, and I'm curious to see what route she wants to take for my Myositis. I'm still not in remission, and Prednisone is obviously not a choice anymore. I'm down to 2 mgs of the steroid. She doesn't want to explore any new treatments, so I'm frustrated with her decisions. Will this be a pointless appointment?